| dc.description.abstract | Burn is a serious injury with high prevalence in childhood and adolescence. It
is considered a public health problem and it can cause serious aesthetic and functional
changes, as well as emotional and social disorders, which compromise the Quality of Life
(QOL) and family dynamics. Objective: This thesis aims to analyze the interrelationships
between burns, QOL and daily routine of children and teeenagers during the rehabilitation
after hospital discharge. Method: The thesis was structured in articles: one is an integrative
review of the literature and another one is a result of a field research, which was based on the
presupposed of the Bioecological Theory of Human Development (BTHD) and used the
Process-Person-Context- Time (PPCT). In field research, a mixed parallel convergent and
longitudinal prospective study was developed at the rehabilitation clinic of a public hospital
located in the city of Recife, state of Pernambuco, from October 2016 to July 2018. The
sample was composed of five youngsters of both genders, with deep burns, having had
hospital discharge in a maximum of three months, and six caregivers. Data collection was
performed through a socio-demographic and clinical questionnaire, physical exams and
consultations to the youngsters’ charts. QOL was evaluated through the Brazilian version of
KIDSCREEN-52 (Versions for the young and for parents/caregivers). The daily routines were
evaluated from semi-structured interviews that followed a pre-elaborated script, having had
audio recorded. The quantitative data were analyzed in a descriptive way, considering
averages and percentiles. The responses of the children and teenagers and their caregivers
were compared to the KIDSCREEN-52 questionnaire in three moments, along 12 months.
The interviews were transcribed and analyzed according to the Thematic Analysis proposed
by Minayo. In the end, the data were used through an integrated way and excerpts from the
interviews were used to justify (or counterpoise) the quantitative results. Results: The
integrative review of the literature showed that burns negatively affected all domains of QoL
in children and adolescents; it showed that injuries in specific areas, such as face and hands,
further compromise areas related to psychosocial health and also showed that longitudinal
studies are more appropriate than cross-sectional studies to identify risk factors caused by
burn injury in life and health of this population. Over time, there is a tendency to reduce the
negative burn impact on the QoL of these individuals. In the field survey, the sample
consisted of five young people (11 to 15 years old) and six caregivers. It was observed that
generally the burns caused several negative repercussions in the QoL and in the daily routine
of the participating children and teenagers. But in the end of twelve months, overall QoL
appeared to be less affected, although the 'Friends and Social Support', 'School Environment'
and 'Financial Aspect' remained compromised. The daily routine of the youngsters was very
compromised and the presence of scars made it difficult to return to school and to social
interactions with peers due to experiences of stigmatization over which they were victims.
Final Considerations: Burning caused negative repercussions, especially in the psychosocial
dimensions of the QoL of the youngsters from this research. In the daily routine, it was
observed social participation difficulties due to bullying and stigmatizing behaviors about the
scars. | eng |
